Yeah, it is always the same after rain there will be sunshine, and after sun, rainy days will follow. I am still in heaven as today it is a lucky day. I went up the stairs without oxygen, slowly and breathing through the nose, did some cloth arrangements in my son´s room and went downstairs with a heavy box. I didn’t felt that much “stress” or had the feeling I can’t breath and by checking my values it was confirmed! 92% oxygen and 82 heart rate, after sitting two minutes 98% and 75 heart rate – chaka! So what I am learning at the moment, is breathing via my nose, in AND out and doing everything a little slower and with patience. Despacito y lento are my words for 2018! Today I can say it with a smile and of course I want to keep this happy feeling as I know there are days, I don´t feel well. Even as today i feel a bit dizzy and evil. I didn’t´t had this the last weeks. I am trying to find out, why it happens sometimes, as tonight I slept well and 8 hours. I took my pill (Adempas) very early this morning around 8.45am – usually I do an hour later. And I was drinking a strong green fresh tea…might be the combination of my green tea and the medicine don´t fit together…? And I had breakfast very early around 9.30am with muesli, yoghurt and fruits…
Also I received some good news we have to proof, that vueling offers oxygen on board for free (!?!) which means I could fly from Ibiza to Frankfurt via Barcelona and then home direct (as direct flights starting around 25th march due to easter holidays). All research costs a lot of time and always depends on the people you are talking with or emailing with but I have to say that so far my experiences are very good and I receive a lot of help and support from strangers. Of course, we could say it is their job, but they really try to help. That´s why I also did a check off on my to do list finally, as I sent a healthy Tea box to a woman called Mrs. Waelde, as she was an amazing help through all my complications to get my prescriptions for Adempas and was supporting us during the adaption while I was travelling between Munich, Bad Nauheim, Ulm and Ibiza. Also a little present for the lovely lady from Vitalaire as she always did me a favour regarding my oxygen machines. I have a few more on my list I am grateful for, so not finished yet with saying “thank you”.